OFFICIAL SELECTIONS 2017

We are thrilled to have so many amazing films to screen.

Day 1 – Oct 2

Noon 500 Kendall Street Sanofi Genzyme First Floor

• Rare Fighters presented by The PEP

What Sick Looks Like directed by Nerris Nassiri 2 min. 

Believe directed by Jo Ann Santangelo 30 min. addresses Dup15q

The 100,000 Genomes Project - How We Get Results 5 min. produced by Creative Connection

Tess is Not Alone directed by Bo Bigelow 8 min. addresses USP7 mutations

Until Now directed by Dana Altman   8 min. addresses Degenerative Neurological Disorder

This is Michelle directed by Patrice Lighter 8 min. addresses Epidermolysis Bullosa

Day 1 Slate #2

2:30 PM 500 Kendall Street Sanofi Genzyme First Floor

• Rare Breakthroughs presented by Sanofi Genzyme

Life & Atrophy 24 min. addresses SMA directed by Gareth Burghes http://curesma.org/    --link is to the trailer only

Genetics vs Genomics 1 min. 

Menkes Disease: Finding Help & Hope directed by Daniel DeFabio   5 min, addresses Menkes Syndrome

Chiari Malformation directed by Elizabeth Brubaker and Nerris Nassiri 1 min., addresses Chiari Malformation

Rare In Common directed by Alisa Shakarian & Marc Dole   25 min. addresses Duchenne Muscular Dystrophy, Morquio A Syndrome, Sturge-Weber Syndrome, Ehlers-Danlos Syndrome, Chiari Malformation, Osteogenesis Imperfecta,

Day 1 slate #3

5:00 PM 500 Kendall Street Sanofi Genzyme First Floor

• Rare Insights presented by Premier Research

B+ directed by Nazir Mirzaee 8 minutes, addresses Thalassemia

Saving Sight directed by Nate Strubhar 21 minutes, addresses Choroideremia (CHM)

Fragile X in Frame directed by Rick Guidotti 10 minutes, addresses Fragile X Syndrome

Imagine directed by Carl Mason 10 minutes addresses Niemann Pick Type C

Day 2 Slate #1

2:00 PM 40 Brattle Street The Brattle Theater

• Rare Adventures presented by Horizon

Magic Bracelet directed by Jon Poll 18 minutes, addresses Mitochondrial Disease

This is Mito directed by Jon Dorflinger 6 minutes, addresses Mitochondrial Disease

SickKids: Ask Hermin - Urea Cycle Disorder 5 minutes addresses Urea Cycle Disorder

Adventures of Lucy directed by Teddy Valentovich 15 minutes, addresses childhood leukemia
Note: While this is not a rare disease we felt the experience conveyed was relevant to those facing Rare.

Cuerdas directed by Pedro Solís García 11 minutes--available to buy on Amazon Prime

Finn directed by Christian Schultz 7 minutes, addresses Hunter Syndrome MPS

Day 2 Slate #2

4:30 PM 40 Brattle Street The Brattle Theater

• Rare Heroes presented by 32 Mile Media
 

DxONE directed by Dan Masucci 18 minutes, addresses Diabetes Type 1
Note: While this is not a rare disease we felt the experience conveyed was relevant to those facing Rare.

Love is Out There directed by Ghita Benslimane 5 minutes, addresses Frontotemporal Degeneration (FTD)

Special Blood directed by Natalie Metzger   60 minutes, addresses HAE Hereditary Angiodema available to buy in iTunes

Day 2 Slate #3

7:00 PM 40 Brattle Street The Brattle Theater

• Rare Diagnosis presented by The Menkes Foundation

Our Curse directed by Tomasz Śliwinski 28 minutes, addresses Ondine's Curse CCHS-link is to trailer only

Surviving Degos Disease directed by Dale Mattison 4 minutes, addresses Degos Disease

Rare is not an Excuse directed by Jason Cohen 6 minutes, addresses NGLY1  

Morgan's Story 2.5 minutes, addresses HNRNPH2 Disorder

Menkes Disease: Finding Help & Hope  directed by Daniel DeFabio 12 minutes, addresses Menkes Syndrome

Imagine directed by Carl Mason 10 minutes, addresses Nieman Pick Type C

Day 2 Slate #4

9:00 PM 40 Brattle Street The Brattle Theater

Up for Air directed by Artem Agafonov 65 minutes addresses Cystic Fibrosis