Counting Every Second, is the story of Hannah Sames. A beautiful, young girl, diagnosed with GAN (Giant Axonal Neuropathy) and her appreciation for the lab techs working on her cure.
Directed by Andrew Puccio 18 minutes
We’re glad to introduce a new weekly spotlight on some of the amazing Rare Disease films out there. Each week we will pick one film to highlight here and include the link to watch it online. Be sure to watch them in full screen mode. Most of these will be films we’ve screened at our film festival.