“Unconditional, Raising a Glass Child with a PACS1 Sibling” directed by Jon Dorflinger looks at the impacts of a rare disease on the sibling in “typical” health. Charlie has a brother Finn who has PACs1. Siblings like Charlie have been called “glass siblings” since parents often look through them to tend to the more urgent needs of the child in crisis.
More information is here.
We’re glad to introduce a new weekly spotlight on some of the amazing Rare Disease films out there. Each week we will pick one film to highlight here and include the link to watch it online. Be sure to watch them in full screen mode. Most of these will be films we’ve screened at our film festival.