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DISORDER: The Rare Disease Film Festival

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We’re glad to introduce a new weekly spotlight on some of the amazing Rare Disease films out there. Each week we will pick one film to highlight here and include the link to watch it online. Be sure to watch them in full screen mode. Most of these will be films we’ve screened at our film festival.

"Brick in the Wall" on Myotubular Myopathy

March 18, 2020


Brick in the Wall 18.5 minutes, addresses Myotubular Myopathy directed by Seth Evans and Jordan Danelz

Brick in the Wall follows the life and legacy of Joshua Frase, and his parents Allison and Paul (ex NFL defensive tackle) on their journey of finding a cure for his rare disorder, myotubular myopathy (MTM).

← "Beyond Blue" by Cynthia Wade on a rare cancer survivor."Perfect Brothers" on Goldenhar Syndrome →

Disorder: RDFF is produced by Rare Outreach Coalition, LLC.